(guest post by Kate)
We can’t wait for 2009! The last month has been really hard, and I’m anxious to see Adam continue to make progress. In good news, Adam was on trach collar for 8 consecutive hours today and felt good doing it. It’s getting easier to be on trach collar and he reports that [...]
(Guest post by Jess, who has had a great day here)
4 hours on trach collar – not the most fun Adam’s ever had, but he did it, and did it well. So well in fact, that he did a little dance!
(post by the mom)
It’s Christmas morning, the guy slept better with a little chemical help last night (hip joint pain and general muscle/joint discomfort are the primary culprits) (fentenol patch and Trazadone, the helpful agents)
The sun is shining in.
He’s able to wrinkle his forehead with his eyebrow raises.
He was on CPAP (doing his own breathing, [...]
We’ve had a good day, with time spent with Kate, Jess & Josh, Kate’s parents, Adam’s mom, Kate’s brother Greg, Mike and John. We’ve spent a lot time in a comfy waiting room, taking turns visiting with Adam in smaller groups.
(Adam is giving me mac tech-support as I type – I don’t [...]
(guest post by Kate)
Adam is asleep after a day that seemed to be full of stuff. He worked with PT this morning and sat in “chair mode” on his bed (literally the bed ends up looking like a barcalounger) for a half hour, which was great. He also had his second round of plasmapheresis, which [...]