(guest post by Adam’s mom)
Things look and feel better.
The new attending doc in the ICU this morning had a different take on Adam’s reality of severe axonal damage GBS. He feels that there’s a big range of recovery and that Adam has characteristics which he thinks predict at least a good partial recovery over [...]
(guest post by Adam’s mom)
Bad news. The results of the nerve and muscle test show severe axonal damage to the nerves. This means that Adam has a more severe form of Guillan Barre with a much worse prognosis.
Of the 20% of Guillan Barre patients who have serious axonal damage, only 20% of them [...]
(guest post by Kate)
For those of you wondering what happened to the posting, I had some technical difficulties with Adam’s blog and have been posting to his live journal community. For an update on the last 2-3 days go to:
http://community.livejournal.com/qgbs
It’s open to everyone and you don’t have to be a member of live journal unless [...]
(guest post by kate)
Unfortunately not in a good way.
Today was really, really hard. The morning was fine. In fact, Adam started the day like the previous 2 days with care from Kathleen (including a hair wash, which he desperately needed). The only thing that seemed different was that his voice wasn’t as strong. He got [...]
We’re cautiously optimistic that the plateau continues.
Adam had a nerve conduction test yesterday, and we still don’t have definitive results. It was worse than the last test, which was expected, but the doctors said it was difficult to tell if he just had damage to the myelin (the insulation of the nerve), or if there [...]