Bad News
(guest post by Adam’s mom)
Bad news. The results of the nerve and muscle test show severe axonal damage to the nerves. This means that Adam has a more severe form of Guillan Barre with a much worse prognosis.
Of the 20% of Guillan Barre patients who have serious axonal damage, only 20% of them recover . 80% of this group don’t recover or only somewhat over a long period of time.
The doctors think that the plasma phoresus intervention has a better chance of impacting this severe GBS
Though Adam may have had a bad reaction to plasma phoresus when they first tried it, they feel it’s worth taking the chance that would happen again for the possibility of cleaning out the antigens which are hurting him.
They’re putting the line in tonight and will start the treatments tomorrow.
Needless to say, we’re in shock. and focusing on that 20% recovery possibility.
I have nothing philosophical to say.
December 18th, 2008 at 11:59 pm
Words fail me. Adam’s the one that always knows the best turn of phrase, the appropriate response. But “I’m thinking of you” doesn’t seem strong enough anymore. I’m not sure who is listening, Adam, but I’m praying. I’m praying hard. I love you, brother.
December 19th, 2008 at 6:32 am
I was with Judy Pierrotti this weekend at a bar mitzvah. Judy told me then about Adam, and asked that the congregation remember him as someone fighting illness. Please know that everyone back here in Madison loves him, loves all of you, and is sending their strength.
December 21st, 2008 at 2:31 pm
We just heard the news Adam and want you to know that we are thinking of you and praying for you. I have forwarded the news to Andrew and Leah and be sure that they are thinking about you and praying as well. Even though many years have passed, we still feel a strong connection to you and your family. We send our love. :)